Posts Tagged ‘lung cancer’

Addario Lung Cancer Foundation Creates Patient Care Advisory Board to Drive Better Outcomes for Lung Cancer Patients

Posted: Aug 28, 2015 | Posted by Kassy Perry | Comments Off on Addario Lung Cancer Foundation Creates Patient Care Advisory Board to Drive Better Outcomes for Lung Cancer Patients

Patients and caregivers join ALCF leadership to enhance patient programs and services

SAN CARLOS, Calif.-Three years ago, 28-year-old Emily Bennett Taylor was diagnosed with Stage IV lung cancer. Emily was a state track champion, a collegiate volleyball player and had never smoked a day in her life. After the initial shock, Emily reached out to the Bonnie J. Addario Lung Cancer Foundation (ALCF), asking for education, support and encouragement in the face of the devastating survival statistics. Today, Emily is two and a half years No Evidence of Disease (NED), serves as a patient advocate and spokesperson for the ALCF and is a founding member of the foundation’s newly launched Addario Patient Care Advisory Board (APCAB).

“Just three years ago I was struggling with a new diagnosis, devastating survival rates and a complete lack of support for lung cancer patients,” said Emily. “Through my involvement in the APCAB I am able to help drive patient-focused goals and services, inspired by a patient perspective. I am honored to have a seat at the table where decisions are being made and using my experience to help guide the services the ALCF offers to everyone impacted by this devastating disease.”
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Chest Center of the Carolinas at FirstHealth Moore Regional Hospital Honored for Excellence in the Care and Treatment of Lung Cancer Patients

Posted: Jul 8, 2015 | Posted by Kassy Perry | Comments Off on Chest Center of the Carolinas at FirstHealth Moore Regional Hospital Honored for Excellence in the Care and Treatment of Lung Cancer Patients

Bonnie J. Addario Lung Cancer Foundation Awards FirstHealth of the Carolinas with Designation as a Community Hospital Center of Excellence

SAN CARLOS, Calif. and PINEHURST, NC (July 8, 2015) –The Addario Lung Cancer Foundation (ALCF) has awarded the Chest Center of the Carolinas at FirstHealth Moore Regional Hospital in Pinehurst, North Carolina, the official designation as a Community Hospital Center of Excellence. The ALCF Centers of Excellence award recognizes community hospitals for their individualized care and treatment of lung cancer patients.

“Right now 80 percent of all cancer patients are treated at community hospitals,” said Bonnie J. Addario, a stage 3B lung cancer survivor and ALCF founder. “Our multidisciplinary, patient-centric Centers of Excellence Program raises the bar on the standard of care for lung cancer patients.”
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Bonnie J. Addario Lung Cancer Foundation Launches First Ever Spanish Language Resources to Help Patients Navigate Care, Diagnosis and Treatment

Posted: May 7, 2015 | Posted by Kassy Perry | Comments Off on Bonnie J. Addario Lung Cancer Foundation Launches First Ever Spanish Language Resources to Help Patients Navigate Care, Diagnosis and Treatment

Versión Española

Foundation releases Spanish version of Patient Handbook and Living Room support group

San Carlos, Calif. (May 7, 2015) – Today, the Bonnie J. Addario Lung Cancer Foundation (ALCF) released a Spanish-language version of its patient handbook, “Navigating Lung Cancer, 360 Degrees of Hope” and announced the first Spanish-language Living Room support group on May 12, 2015.

“There is a huge void of resources for Spanish speaking people with lung cancer,” said Bonnie J. Addario, 10 year lung cancer survivor and founder of the ALCF. “Being diagnosed with cancer is scary enough but not knowing what resources are available to educate yourself makes good health care decision making impossible. By translating educational material and resources for Spanish-speaking patients, we are creating survivors.”
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International Partnership to Address Lung Cancer Epidemic

Posted: Feb 10, 2015 | Posted by Kassy Perry | Comments Off on International Partnership to Address Lung Cancer Epidemic

San Carlos, Calif. (February 10, 2015)– According to a recent study in the Annals of Oncology, lung cancer fatalities are set to overtake breast cancer deaths among European women for the first time this year. It is predicted lung cancer deaths for women in Europe will reach 14.24 per 100,000 of the population in 2015.

To address this, representatives from the Addario Lung Cancer Foundation (ALCF) and the Addario Lung Cancer Medical Institute (ALCMI), Bonnie Addario and Scott Santarella, along with representatives from the University of Torino and Women Against Lung Cancer in Europe (WALCE), Prof. Giorgio Scagliotti and Prof. Silvia Novello and Stefania Vallone, agreed to form a mutually beneficial working partnership to the benefit of lung cancer patients worldwide.

“There is an immediate need to address the lung cancer epidemic as a global issue,” said Bonnie Addario, Stage 3B lung cancer survivor and founder of the ALCF and ALCMI. “The ALCF has come together with other leading organizations to work together to educate patients and doctors with the goal of eradicating lung cancer.”

“While patient advocates around the world have played an important role in raising lung cancer awareness, misinformation continues to surround this disease, creating barriers to treatment and patient care” said Stefania Vallone. “We are calling on the general public to help correct misperceptions around lung cancer and highlight the disease for what it truly is– a complicated illness with many causes that can affect anyone, regardless of age, gender or smoking history.”

The basis of the partnership includes public relations, marketing and promotional projects, joint patient educational programs, shared patient services projects and clinical trial/study initiatives. Examples of these include:

  • Partnership announcement in conjunction with World Lung Cancer Day on February 4, 2015
  • Website links shared on each organization’s site
  • Identification of Community Hospital Centers of Excellence (COE) in Italy to be a part of ALCF COE program
  • Jointly sponsored patient education program at IASLC 2015 World Congress in Denver, CO
  • Potential joint medial/journalism award for Excellence in Lung Cancer Awareness Reporting
  • ALCF materials translated in Italian and available via WALCE
  • WALCE materials translated into English and available via ALCF
  • Other initiatives, to be identified

For those interested in learning more about ALCF, visit www.lungcancerfoundation.org and follow its activities on Twitter and Facebook.

For those interested in learning more about WALCE visit www.womenagainstlungcancer.eu/ and follow its activities on Twitter and Facebook.

About the Bonnie J. Addario Lung Cancer Foundation

The Bonnie J. Addario Lung Cancer Foundation (ALCF) is one of the largest philanthropies (patient-founded, patient-focused, and patient-driven) devoted exclusively to eradicating Lung Cancer through research, early detection, education, and treatment. The Foundation’s goal is to work with a diverse group of physicians, organizations, industry partners, individuals, patients, survivors, and their families to identify solutions and make timely and meaningful change and turn lung cancer into a chronically managed disease by 2023. The ALCF was established on March 1, 2006 as a 501c(3) non-profit organization and has raised more than $20 million for lung cancer research and related programs.

About the Addario Lung Cancer Medical Institute

The Addario Lung Cancer Medical Institute (ALCMI), founded in 2008 as a 501c(3) non-profit organization, is a patient-centric, international research consortium driving research otherwise not possible, evidenced by ALCMI’s current clinical studies CASTLE, INHERIT EGFR T790M, and the Genomics of Young Lung Cancer. ALCMI overcomes barriers to collaboration via a world-class team of investigators from 22+ institutions in the U.S. and Europe, supported by dedicated research infrastructures such as centralized tissue banks and data systems. ALCMI directly facilitates research by combining scientific expertise found at leading academic institutions with patient access through our network of community cancer centers – accelerating novel research advancements to lung cancer patients.

About WALCE

WALCE is an European non-profit, lung cancer patient-focused organization founded in Italy in 2006 with the aim to educate, support and advocate for lung cancer patients and their caregivers and to circulate more accurate and up-to-date information in terms of prevention, diagnosis and therapy.

WALCE is included in a national and international network and cooperates with different stakeholders at any level with this purpose to empower patients and general public and eradicate the stigma which surrounds lung cancer.

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Support App for Lung Cancer Patients

Posted: Dec 31, 2014 | Posted by Kassy Perry | Comments Off on Support App for Lung Cancer Patients

News Headline: Support App for Lung Cancer Patients
Date: 12/31/14
Outlet Full Name: BBC Capital
http://www.bbc.com/capital/specials/protection-now/health/support-app-for-lung-cancer-patients_a-32-490.html

A new free app has been launched to provide advice and support for people with lung cancer and their families.

The app includes a patient information handbook, information on US-based lung cancer support services, a glossary of lung cancer terms, and information for patients and their caregivers to use during diagnosis, care and treatment.

The app also helps track data and connects patients to clinical trials and genomic testing.

The app has been launched by the non-profit Bonnie J. Addario Lung Cancer Foundation (ALCF) in association with the Open Health Network (OHN), a San Francisco-based start-up that specializes in health-related info tech.

OHN founder Tatyana Kanzaveli described the collaboration as “the first step in unlocking a wealth of self-reporting data that’s missing from current medical research and disease management efforts”.

“Information is our best weapon in the fight for lung cancer patients,” she said.

ALCF founder Bonnie J. Addario described the cancer journey as “scary, overwhelming, confusing.”

She said there wasn’t a lot of information dedicated to lung cancer compared to other forms of cancer.

“We created this app to close the gaps of information because we believe the more knowledge patients have, the better equipped they and their family will be to deal with lung cancer and become survivors,” she said.

“No two patients are alike, nor should they be treated the same. The Lung Cancer Foundation app helps patients navigate their individual disease and empowers patients to determine what treatment options are best for their specific cancer mutation.”

Lung Cancer Foundation will be available on iTunes and Google Play.

Free Lung Cancer Foundation App Empowers Patients and Helps Research

Posted: Dec 26, 2014 | Posted by Kassy Perry | Comments Off on Free Lung Cancer Foundation App Empowers Patients and Helps Research

News Headline: Free Lung Cancer Foundation App Empowers Patients and Helps Research
Date: 12/26/14
Outlet Full Name: Lung Cancer News Today
http://lungcancernewstoday.com/2014/12/26/free-lung-cancer-foundation-app-empowers-patients-and-helps-research/

Partners Bonnie J. Addario Lung Cancer Foundation (ALCF) and Open Health Network (OHN) recently launched an app called “Lung Cancer Foundation“, which is the first complimentary app dedicated to supporting and empowering patients and families living with lung cancer. Its key features include the ALCF’s patient handbook, information on Community Hospital Centers of Excellence, a glossary of disease-related terms and information for patients and their caregivers to use during diagnosis, care and treatment. The app also allows patient data tracking, and refers patients to ongoing clinical trials and genomic testing.

The ALCF and OHN designed the app to help make the user feel in control of his condition, ensuring the right answers to all their questions are available at a simple tap. It also serves as a remote self-monitoring tool that compiles patient data from diagnosis to treatment, along with a constantly available support network. In 2015 the app will also connect to the ALCF’s online patient portal to track data and connect patients to appropriate research programs and testing.

“A cancer journey is scary, overwhelming, confusing and for lung cancer patients, it’s even more difficult because there’s not a lot of information available,” Bonnie J. Addario, stage 3B lung cancer survivor and ALCF founder said in a press release. “We created this app to close the gaps of information because we believe the more knowledge patients have, the better equipped they and their family will be to deal with lung cancer and become survivors.”

Tatyana Kanzaveli, the founder of OHN, said their partnership with ALCF is the beginning of finally filling in the information and knowledge gap in today’s medical research and disease management efforts. She adds, information is the best weapon against oncological research, especially for lung cancer, and that the OHN together with ALCF are committed to driving patient participation in clinical trials, surveys, and data tracking opportunities in order to advance and accelerate pivotal research.

The Lung Cancer Foundation app is free to download from the App Store, and from Google Play. Those interested to learn more about the ALCF may visit www.lungcancerfoundation.org and follow them on Twitter and Facebook.

Bonnie J. Addario Lung Cancer Foundation Honors Novartis for its Contributions to Lung Cancer Research and Development

Posted: Nov 10, 2014 | Posted by Kassy Perry | Comments Off on Bonnie J. Addario Lung Cancer Foundation Honors Novartis for its Contributions to Lung Cancer Research and Development

Novartis to receive the “Simply the Best” award at the ALCF Gala on November 8

San Carlos, Calif. (November 8, 2014)– The Bonnie J. Addario Lung Cancer Foundation (ALCF) will honor Novartis today for its dedication and recent breakthroughs in lung cancer research and development. Novartis will receive the “Simply the Best” award at the ALCF’s Annual Gala taking place in San Francisco.

“Lung cancer is the top cancer killer worldwide and patients’ five-year survival rate remains stagnant at 16 percent,” said Bonnie J. Addario, founder of the ALCF and a stage 3B lung cancer survivor. “Research and development is essential to change the survival rate and we are excited about Novartis’ medical advancements – it’s a big step forward for people with lung cancer.”

In April, Novartis received Food and Drug Administration (FDA) early approval for an ALK inhibitor following the FDA’s Breakthrough Therapy Designation. Novartis recently expanded its efforts in the field of immunotherapy, specifically for non-small cell lung cancer. In October, the company announced a clinical collaboration with Bristol-Myers Squibb (BMS) to study several of Novartis’ molecularly targeted compounds in combination with an immunotherapy agent from BMS. All are steps to help patients in their fight against lung cancer through the development of medicines that can help target the deadly disease with an individualized approach.
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Lung Cancer Study Underway at Memorial Cancer Institute

Posted: Nov 10, 2014 | Posted by Kassy Perry | Comments Off on Lung Cancer Study Underway at Memorial Cancer Institute

News Headline: Lung Cancer Study Underway at Memorial Cancer Institute
Date: 11/6/14
Outlet Full Name: Hollywood Gazette
Author: Caren Conway
http://hollywoodgazette.com/FL/

(Follow the link above and see page 24)

bonnie

Join the Fight: Stand Up to Lung Cancer

Posted: Nov 10, 2014 | Posted by Kassy Perry | Comments Off on Join the Fight: Stand Up to Lung Cancer

News Headline: Join the Fight: Stand Up to Lung Cancer
Date: 11/6/14
Outlet Full Name: Healthy Women
Author: Emily Bennett Taylor
http://www.healthywomen.org/content/blog-entry/join-fight-stand-lung-cancer

At 28 years old, I was naively unaware as I sat in my doctor’s office. She wanted to discuss the results of my recent CT scan, ordered after a chest X-ray, which had come after several months of coughing, wheezing and shoulder pain. Perhaps, looking back, I should have been more worried. But as a young, healthy former college athlete, what did I have to fear?

Apparently – a lot. That day, my doctor told me I had a tumor the size of a golf ball in my right lung. A biopsy and several other tests revealed that it was Stage IV lung cancer.

As if having a golf-ball-sized tumor in your lung does not make breathing difficult enough, learning it’s there in the first place does. I felt blindsided. I had never smoked or been around second-hand smoke. I’d always been active and healthy. It made no sense. How did I get LUNG cancer?
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KFPK Public Radio: Interview on the Genomics of Young Lung Cancer Study

Posted: Sep 2, 2014 | Posted by Kassy Perry | Comments Off on KFPK Public Radio: Interview on the Genomics of Young Lung Cancer Study

Health: More than 170,000 people die annually from lung cancer in the country. Important oncologist informs us of treatments and research for patients under 40 years.
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Listen to the Interview