Posts Tagged ‘Addario Lung Cancer Medical Institute’

Addario Lung Cancer Foundation and Schmidt Legacy Foundation Partner to Drive Lung Cancer Research

Posted: Sep 3, 2015 | Posted by Kassy Perry | Comments Off on Addario Lung Cancer Foundation and Schmidt Legacy Foundation Partner to Drive Lung Cancer Research

Collaboration on 5K will raise funding for the Genomics of Young Lung Cancer study

SAN CARLOS, Calif. & CHINO HILLS, Calif – The Bonnie J. Addario Lung Cancer Foundation (ALCF) and Schmidt Legacy Foundation (SLF) today announced they are merging the ALCF’s 5th Annual “Your Next Step is the Cure” 5K with SLF’s “Rise for a Cure” 5K on January 24 at Bonelli Park, San Dimas, Calif. This collaboration allows both foundations to reach a broader audience, raise awareness for lung cancer patients and generate more funding to put towards research, particularly the Genomics of Young Lung Cancer (GoYLC) study.
“This collaboration reflects our two organizations’ focus on putting patients first, raising awareness for lung cancer patients across the world and increasing funding for research to improve survival rates,” said Scott Santarella, president and CEO of the ALCF. “We are honored to have the support and partnership of the Schmidt family.”

The ALCF is a patient-led, patient-driven advocacy organization committed to providing resources, education and care to all patients diagnosed with lung cancer. The ALCF’s partner organization, the Addario Lung Cancer Medical Institute (ALCMI) introduced the GoYLC study in collaboration with Barbara Gitlitz, MD, medical oncologist at the University of Southern California Norris Cancer Center, to research why lung cancer occurs in young adults.

“The GoYLC study is an incredibly important research project for thousands of young adults diagnosed with lung cancer,” said Jeff Schmidt, founder and board member at SLF. “We are passionate about supporting this study and expanding our partnership with the ALCF to support the critical education, research and care they provide to lung cancer patients across the country.”

The SLF was founded in memory of Gary R. Schmidt, and supports medical research projects, focusing primarily on lung cancer. SLF partners with leading researchers and provides the advocacy and funding to help improve care and treatment for patients with lung cancer. For two years in a row, SLF has contributed $10,000 to ALCMI’s ongoing GoYLC study and has supported Dr. Gitlitz’s work for the past several years.

For more details or to register for the 5K please visit www.lungcancerfoundation.org/events.

About the Bonnie J. Addario Lung Cancer Foundation

The Bonnie J. Addario Lung Cancer Foundation (ALCF) is one of the largest international philanthropies (patient-founded, patient-focused and patient-driven) devoted exclusively to eradicating lung cancer through research, early detection, education and treatment. The Foundation’s goal is to work with a diverse group of physicians, organizations, industry partners, individuals, patients, survivors and their families to identify solutions and make timely and meaningful change and turn lung cancer into a chronically managed disease by 2023. The ALCF was established on March 1, 2006, as a 501c(3) non-profit organization and has raised nearly $25 million for lung cancer research and related programs. For those interested in learning more about ALCF, visit www.lungcancerfoundation.org and follow its activities on Twitter and Facebook.

About the Addario Lung Cancer Medical Institute

The Addario Lung Cancer Medical Institute (ALCMI), founded in 2008 as a 501c(3) non-profit organization, is a patient-centric, international research consortium driving research otherwise not possible, evidenced by ALCMI’s current clinical studies CASTLE, INHERIT EGFR T790M, and the Genomics of Young Lung Cancer. ALCMI overcomes barriers to collaboration via a world-class team of investigators from 22+ institutions in the U.S. and Europe, supported by dedicated research infrastructures such as centralized tissue banks and data systems. ALCMI directly facilitates research by combining scientific expertise found at leading academic institutions with patient access through our network of community cancer centers – accelerating novel research advancements to lung cancer patients.

About the Schmidt Legacy Foundation

The Schmidt Legacy Foundation seeks to make a difference in the lives of those who are challenged by diseases, illnesses or other hardships. We aspire to make a difference in our community by tackling challenging medical and social issues of today and tomorrow. Our current focus is to fund research that improves the quality and length of life for lung cancer patients; to raise hope and find a cure! Find more information at www.schmidtlegacyfoundation.org and follow its activities on Facebook.

Genomics of Young Lung Cancer and INHERIT Studies Accepted for Presentation at ASCO

Posted: May 13, 2015 | Posted by Kassy Perry | Comments Off on Genomics of Young Lung Cancer and INHERIT Studies Accepted for Presentation at ASCO

Two Addario Lung Cancer Medical Institute research studies funded in part by the Bonnie J. Addario Lung Cancer Foundation chosen for presentation at the May/June 2015 American Society of Clinical Oncology Annual Meeting

San Carlos, Calif. (May 13, 2015) – The Bonnie J. Addario Lung Cancer Foundation (ALCF) is pleased to congratulate the Addario Lung Cancer Medical Institute (ALCMI) on the acceptance of two abstracts for presentation at the American Society of Clinical Oncology (ASCO) Annual Meeting in May 2015. ALCMI investigators will present study information and results from the Genomics of Young Lung Cancer and INHERIT EGFR studies.

“We are very proud to have provided the seed grant to make these studies possible and to continue to support ALCMI in advancing life-saving innovations for lung cancer patients,” said Bonnie J. Addario, stage 3B lung cancer survivor and founder of both ALCF and ALCMI.

The Genomics of Young Lung Cancer study is a first-of-its-kind study to understand why lung cancer occurs in young adults, who are usually quite healthy and never smokers, and to identify lung cancer gene mutations that may help impact their treatment. Researcher’s evolving understanding of the disease and new molecular tools suggest that young age may be an under-appreciated clinical marker of new genetic subtypes. Launched in 2014, an important goal for this research study is to reveal new lung cancer sub-types requiring distinct treatment strategies.
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International Partnership to Address Lung Cancer Epidemic

Posted: Feb 10, 2015 | Posted by Kassy Perry | Comments Off on International Partnership to Address Lung Cancer Epidemic

San Carlos, Calif. (February 10, 2015)– According to a recent study in the Annals of Oncology, lung cancer fatalities are set to overtake breast cancer deaths among European women for the first time this year. It is predicted lung cancer deaths for women in Europe will reach 14.24 per 100,000 of the population in 2015.

To address this, representatives from the Addario Lung Cancer Foundation (ALCF) and the Addario Lung Cancer Medical Institute (ALCMI), Bonnie Addario and Scott Santarella, along with representatives from the University of Torino and Women Against Lung Cancer in Europe (WALCE), Prof. Giorgio Scagliotti and Prof. Silvia Novello and Stefania Vallone, agreed to form a mutually beneficial working partnership to the benefit of lung cancer patients worldwide.

“There is an immediate need to address the lung cancer epidemic as a global issue,” said Bonnie Addario, Stage 3B lung cancer survivor and founder of the ALCF and ALCMI. “The ALCF has come together with other leading organizations to work together to educate patients and doctors with the goal of eradicating lung cancer.”

“While patient advocates around the world have played an important role in raising lung cancer awareness, misinformation continues to surround this disease, creating barriers to treatment and patient care” said Stefania Vallone. “We are calling on the general public to help correct misperceptions around lung cancer and highlight the disease for what it truly is– a complicated illness with many causes that can affect anyone, regardless of age, gender or smoking history.”

The basis of the partnership includes public relations, marketing and promotional projects, joint patient educational programs, shared patient services projects and clinical trial/study initiatives. Examples of these include:

  • Partnership announcement in conjunction with World Lung Cancer Day on February 4, 2015
  • Website links shared on each organization’s site
  • Identification of Community Hospital Centers of Excellence (COE) in Italy to be a part of ALCF COE program
  • Jointly sponsored patient education program at IASLC 2015 World Congress in Denver, CO
  • Potential joint medial/journalism award for Excellence in Lung Cancer Awareness Reporting
  • ALCF materials translated in Italian and available via WALCE
  • WALCE materials translated into English and available via ALCF
  • Other initiatives, to be identified

For those interested in learning more about ALCF, visit www.lungcancerfoundation.org and follow its activities on Twitter and Facebook.

For those interested in learning more about WALCE visit www.womenagainstlungcancer.eu/ and follow its activities on Twitter and Facebook.

About the Bonnie J. Addario Lung Cancer Foundation

The Bonnie J. Addario Lung Cancer Foundation (ALCF) is one of the largest philanthropies (patient-founded, patient-focused, and patient-driven) devoted exclusively to eradicating Lung Cancer through research, early detection, education, and treatment. The Foundation’s goal is to work with a diverse group of physicians, organizations, industry partners, individuals, patients, survivors, and their families to identify solutions and make timely and meaningful change and turn lung cancer into a chronically managed disease by 2023. The ALCF was established on March 1, 2006 as a 501c(3) non-profit organization and has raised more than $20 million for lung cancer research and related programs.

About the Addario Lung Cancer Medical Institute

The Addario Lung Cancer Medical Institute (ALCMI), founded in 2008 as a 501c(3) non-profit organization, is a patient-centric, international research consortium driving research otherwise not possible, evidenced by ALCMI’s current clinical studies CASTLE, INHERIT EGFR T790M, and the Genomics of Young Lung Cancer. ALCMI overcomes barriers to collaboration via a world-class team of investigators from 22+ institutions in the U.S. and Europe, supported by dedicated research infrastructures such as centralized tissue banks and data systems. ALCMI directly facilitates research by combining scientific expertise found at leading academic institutions with patient access through our network of community cancer centers – accelerating novel research advancements to lung cancer patients.

About WALCE

WALCE is an European non-profit, lung cancer patient-focused organization founded in Italy in 2006 with the aim to educate, support and advocate for lung cancer patients and their caregivers and to circulate more accurate and up-to-date information in terms of prevention, diagnosis and therapy.

WALCE is included in a national and international network and cooperates with different stakeholders at any level with this purpose to empower patients and general public and eradicate the stigma which surrounds lung cancer.

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New Clinical Study Aims to Investigate the Genomics of Young Lung Cancer

Posted: Jul 25, 2014 | Posted by Kassy Perry | Comments Off on New Clinical Study Aims to Investigate the Genomics of Young Lung Cancer

Addario Lung Cancer Medical Institute Puts Spotlight on Lung Cancer in Young Adults

San Carlos, Calif. (July 23, 2014)– The Addario Lung Cancer Medical Institute (ALCMI) today launched a new study, the Genomics of Young Lung Cancer, to understand why lung cancer occurs in young adults, who quite often are athletic, never smokers and do not exhibit any of the known lung cancer genetic mutations. ALCMI, a patient-centric, international research consortium and partner of the Bonnie J. Addario Lung Cancer Foundation (ALCF), is facilitating this first-of-its-kind, multi- institutional, prospective genomic study in order to identify new genome-defined subtypes of lung cancer and accelerate delivery of more effective targeted therapies.

“It’s heartbreaking when you meet young adults with lung cancer, who should have their full lives ahead of them but instead are fighting for their lives because of the lack of lung cancer treatments,” said Bonnie J. Addario, stage 3B lung cancer survivor and founder of ALCMI and the ALCF. “This groundbreaking study will investigate why young adults under the age of 40 are getting lung cancer and whether they have a unique cancer subtype, or genotype, that can be treated differently.”
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Lung cancer study of why young, healthy are stricken

Posted: Jun 25, 2014 | Posted by Kassy Perry | Comments Off on Lung cancer study of why young, healthy are stricken

Date: June 24, 2014
Outlet Full Name: San Francisco Chronicle
Author: Victoria Colliver
Read Full Article on SF Gate

Natalie DiMarco’s only obvious risk factor for getting lung cancer was having lungs.

DiMarco had been experiencing respiratory problems for months in 2010, but her doctors just assumed the mother of two had allergies. By the time she learned she had lung cancer, the disease had spread into her lymph nodes and reached the membranes that surround the lungs.

“I’m young, didn’t have any history of smoking, and that’s why a doctor didn’t X-ray me from the beginning,” said DiMarco, now 36, who lives in Penngrove with her husband, daughters, ages 5 and 6, and a teenage stepson.
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***Media Advisory*** The Bonnie J. Addario Lung Cancer Foundation Presents The Living Room

Posted: Mar 19, 2013 | Posted by Kassy Perry | No Comments

The nation’s premiere live-streamed lung cancer support group for patients and family

WHAT: The Bonnie J. Addario Lung Cancer Foundation invites you to join The Living Room, a lively and special support group for those who are directly and indirectly affected by lung cancer. The Living Room takes place the third Tuesday of every month and is live-streamed online. It is the nation’s premier lung cancer support group for lung cancer patients and their families, offering expert opinion and advice not found anywhere else.

WHERE: Visit lungcancerfoundation.org.

WHO: The Lung Cancer Foundation is truly honored to host Geoffrey Oxnard, MD, a world-renown medical oncologist and researcher at the prestigious Dana Farber Cancer Institute in Boston. He has devoted his career to caring for and treating lung cancer patients and researching and implementing better ways of understanding and treating the disease. His current ground-breaking research includes a study of familial lung cancer due to inherited EGFR mutations and a study of young adult lung cancer, both of which are collaborations with the Addario Lung Cancer Medical Institute. For Dr. Oxnard’s full bio, CLICK HERE.

WHEN: Tuesday, March 19, 2013
5:30 – 7:30 p.m. (PST)

WHY: When patients have questions about lung cancer, when they have something they want to talk about, when they need advice from someone who has been there before or from experts who can help, patients don’t have to go far – they just have to go to The Living Room.

VISUALS: The set up is just like a living room.

  • Patients and family all gather around
  • Appetizers and beverages are served
  • Participants listen and interact with leading experts and thought leaders in the field of lung cancer treatment and research

About the Bonnie J. Addario Lung Cancer Foundation

The Bonnie J. Addario Lung Cancer Foundation is one of the largest philanthropies (patient-founded, patient-focused, and patient-driven) devoted exclusively to eradicating Lung Cancer through research, early detection, education, and treatment. The Foundation works with a diverse group of physicians, organizations, industry partners, individuals, survivors, and their families to identify solutions and make timely and meaningful change. BJALCF was established on March 6, 2006 as a 501c(3) non-profit organization and has raised more than $9 million for lung cancer research.

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